本文采用的英格恩产品: CCAA细胞凋亡检测试剂盒(PI)
Holistic management of juvenile idiopathic arthritis across all ages: British Society for Rheumatology Guideline scope
Affiliations
- 1 Department of Paediatric Rheumatology and NIHR Biomedical Research Centre, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
- 2 Expert by Experience, Tonbridge, UK.
- 3 Juvenile Arthritis Research, Tonbridge, UK.
- 4 Department of Paediatrics, University Hospitals Sussex, St Richard’s Hospital, Chichester, UK.
- 5 Expert by Experience, London, UK.
- 6 Health Psychology Section, Institute of Psychiatry, Psychology and Neuroscience, King’s College London, London, UK.
- 7 School of Health and Society, Centre for Applied Health Research, University of Salford, Salford, UK.
- 8 Centre for Adolescent Rheumatology, Department of Ageing, Rheumatology and Regenerative Medicine, Division of Medicine, University College London, London, UK.
- 9 Rheumatology Department, Alder Hey Children’s NHS Foundation Trust, Liverpool, UK.
- 10 Pharmacy Department, Alder Hey Children’s NHS Foundation Trust, Liverpool, UK.
- 11 Paediatric Rheumatology, Royal Manchester Children’s Hospital, Manchester, UK.
- 12 Paediatric & Adolescent Rheumatology, Nottingham University Hospitals NHS Trust, Nottingham, UK.
- 13 CCAA-Kids With Arthritis, London, UK.
- 14 Adult Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UK.
- 15 Children and Young Person’s Rheumatology Research Programme, Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, University of Manchester, Manchester Academic Health Sciences Centre, Manchester, UK.
- 16 Pharmacy Department, Robert Jones & Agnes Hunt NHSFT, Gobowen, UK.
- 17 Rheumatology, Manchester University NHS Foundation Trust, Manchester, UK.
- 18 Manchester Biomedical Research Centre, National Institute for Health and Care Research, Manchester, UK.
- 19 Centre for Musculoskeletal Research, University of Manchester, Manchester, UK.
- 20 Rheumatology Department, Shrewsbury and Telford Hospital NHS Trust, Shrewsbury, UK.
- 21 General Internal Medicine, Shrewsbury and Telford Hospital NHS Trust, Shrewsbury, UK.
- 22 Paediatric Rheumatology, Cardiff and Vale University Health Board, Cardiff, UK.
- 23 Rheumatology Department, Great Western NHS Foundation Trust, Swindon, UK.
- 24 Department of Rheumatology, Royal National Hospital for Rheumatic Diseases, Bath, UK.
- 25 General Paediatrics, Manchester University NHS Foundation Trust, Manchester, UK.
- 26 Postgraduate Institute of Medicine, University of Colombo, Colombo, Sri Lanka.
- 27 Centre for Human Movement and Rehabilitation, School of Health and Society, University of Salford, Salford, UK.
- 28 Paediatric Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UK.
- 29 Bath Centre for Pain Services, Royal United Hospitals, Bath, UK.
- 30 Great Ormond Street Institute of Child Health, University College London, London, UK.
- 31 Rheumatology Department, Barts Health NHS Trust, London, UK.
- 32 Expert by Experience, Rickmansworth, UK.
- 33 Inflammatory Arthritis UK, Rickmansworth, UK.
- 34 Expert by Experience, Belfast, UK.
- 35 Young People and Families Service, Arthritis UK, Belfast, UK.
- 36 Department of Paediatric Rheumatology, Great North Children’s Hospital, Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK.
- 37 Faculty of Medical Sciences, Newcastle University, Newcastle, UK.
- PMID: 42256795
- PMCID: PMC13235788
- DOI: 10.1093/rap/rkag052
Abstract
What does this mean for patients? Juvenile idiopathic arthritis (JIA) is the most common type of arthritis that starts before the age of 16 years. Many children and young people (CYP) continue to be affected by JIA and may need to be on treatment when they are adults. Most CYP with JIA have swollen, stiff and painful joints for at least 6 weeks. JIA can also affect other parts of the body. This includes the skin, the places where tendons join bones (called entheses) and sometimes internal organs. Some young people may also develop inflammation in their eyes, called uveitis. If this is not treated, it can affect eyesight and could lead to sight loss. People with JIA often need medicines to control inflammation. They are usually cared for by a team of healthcare professionals called a multidisciplinary team. This team may include doctors, nurses, pharmacists, physiotherapists, occupational therapists, podiatrists, psychologists and youth workers. They work together to help manage symptoms and prevent long-term damage. The British Society for Rheumatology (BSR) is the main organisation in the UK for healthcare professionals who care for people with JIA. BSR writes guidelines that help healthcare teams provide high-quality care. These guidelines are written with input from experts and people with lived experience. They help make sure that everyone receives good care wherever they live, including during the move from child to adult services. This article explains how BSR will develop a new guideline to diagnose, treat and monitor children, young people and adults with JIA. The guideline will follow the BSR protocol for creating clinical guidelines.
Keywords: Guideline scope; Holistic management; Juvenile Idiopathic Arthritis; Life course.
